Integration and linkage
One of BioGrid’s core capabilities is integrating data from different data sources and linking patient records across data sets.
BioGrid specialises in real-time linkage and visualisation of hospital/clinic-based data (i.e. Real-World Data or RWD) that can be analysed against other measures of relevance, to generate Real-World Evidence (RWE) providing data insights that can be used to evaluate quality of care, treatment effectiveness and guide clinical decision making.
BioGrid operates a federated national data linkage platform that is scalable using robust global vendor hardware and software.
BioGrid does not store linked data: rather the platform is structured to access data across the federation as soon as specific research is authorised.
Custodians of data connected to the BioGrid platform have full control over whom, and for what purpose, their data are accessed. This is managed via the BioGrid online Access Request System, which is overseen by the Melbourne Health Human Research Ethics Committee (HREC) on behalf of the BioGrid collaborators.
BioGrid utilises either probabilistic identity matching or exact matching using a cryptographic hashing function, to enable linkage of individuals’ records across multiple datasets. This is achieved by using a defined set of personally identifying information to create a BioGrid Unique Subject Identifier for each individual providing enduring linkages for authorised research. These processes meet legislative requirements and are consistent with section 3.1 of the NHMRC National Statement on Ethical Conduct in Human Research.
All data transfers and linkages within BioGrid‘s infrastructure are performed over secure and encrypted network connections. Identifiable data is received and managed separately to individuals’ health information so authorised researchers only access coded data (i.e. with identifiers removed).
BioGrid uses the highly regarded IBM Security Identity Management System to control authorised user provisioning and web access to data available through BioGrid.
Refer to IT Requirements for information on what is required at your site for BioGrid to integrate and connect your data to BioGrid.