Available data

Demographic and clinical data from 1 site

Hospital admission data from 5 sites

Clinical and demographic data for patients with muscle-invasive or advanced bladder cancer from multiple sites

Bone Density data from 1 site including demographics, balance study, clinical assessment, comprehensive dietary questionnaires, activity profile, health questionnaires, mood questionnaires, physical profile, sun exposure and side effects. Data from 2006 to 2009.

Clinical registry of HER2 positive metastatic breast cancer from 10 sites including demographics, disease presentation and progression, staging, molecular characterisation, treatment (surgery, systemic therapy, radiotherapy), toxicities and outcomes. Data from 2015 to current.

Results of Biomarker testing on tissue and blood from 1 site. Includes demographics, sample testing institution, staging and date of sample collection and testing primarily in colorectal cancer samples. Tests include CEA, MSI, EGFR. Sample testing from 2000 to 2007.

Results of a study by 1 site on the BRAF tumour marker in colorectal cancer samples.

Biospecimen information on tissue and blood collected from 1 site. Includes data on diagnosis, tissue handling and pathology. Data collected from 1993 to 2008.

Cancer Registry reporting data from 5 sites

Clinical data on central nervous system tumour patients from 1 site including demographics, diagnosis, pathology, staging, treatment and follow up. Data from 1999 to current.

Seizure data on Central Nervous System cancer patients at 1 site including risk factors, history of seizures, treatment, treatment effectiveness and follow up. Data collected in 2007.

Clinical registry of metastatic colorectal cancer from 9 sites including demographics, disease presentation and progression, staging, molecular characterisation, treatment (surgery, systemic therapy, radiotherapy), toxicities and outcomes. Data from 2009 to current.

Survey results of colorectal cancer patients from 1 site on their lifestyle. Includes smoking, alcohol, exercise and family history. Data from 2007 to 2011.

Results of a study by 1 site on the BRAF tumour marker in colorectal cancer samples.

Hospital costings data from 5 sites

Diabetes Clinical Audit data from 11 sites on type and duration of diabetes, demographics, treatment of diabetes, co-morbidities, patient history, insulin pump, pathology, urine testing, complications of diabetes. Data is from 2015 to current.

Elective Surgery data from five sites

Emergency Department information from five sites.

Integration of Epilepsy clinical and research databases from 1 site. Demographics, surgical details, First Seizure Clinic data including diagnosis, treatment drugs, syndromes, provokers and follow up. Pharmacogenetic study including seizure history, cognitive impairments, trial medication use, EEG, family history, medical history, comorbidities, adverse drug reactions, genotyping, initial visit data, follow up visits and Neuropsychological Assessment Scale score at initial visit, 3, 12 and 24 months.

MRI Images database including demographics and image technical information from 1 site. Data from 1994 to 2007.

Family history of cancer includes symptoms, family history, procedures, genetic test results, syndromes, and pedigree information from 2 sites. Data from 2000 to current.

Genetic variant information from 1 site including gene and variant details, pathogenicity (known or suspected), test method and availability of samples (for further testing) and pedigree information. Data from 2014 to current.

Clinical data on head and neck cancer patients from 1 site including demographics, presentation, diagnosis, pathology, staging, treatment and follow up. Data from 2006 to current.

The Women's Healthy Ageing Project is an ongoing prospective, longitudinal, epidemiological study that has been running since 1990. The project collects an extensive range of measures covering cardiovascular, bone, cognitive, urology, endocrinology, psychological, sociological and lifestyle areas.

Demographic and clinical data on hepatocellular cancer patients from 1 site

Clinical and demographic data for patients Hidradenitis suppurativa from 1 site

Demographic and clinical data on infectious diseases including tuberculosis from 2 sites

The Australian and Aotearoa New Zealand Thoracic Clinical Quality Registry (ANZTHOR Registry) collects clinical, demographic and surgical data including outcome data on all thoracic surgery patients across more 10 sites across Australia including public and private hospitals.

The AUstralian Registry and biObank of thRAcic cancers (AURORA) database collects demographic and clinical data including outcome data on all lung cancer patients across several sites including public and private hospitals.

Clinical data on patient complexion, family history, comorbidities, diagnosis, staging, resections, treatment, recurrence and genetic analysis from 1 site. Data from 1996 to current.

Research study of Multiple Sclerosis patients from 1 site. Data includes diagnosis, pathology, MRI scans, monitoring visits, treatments, genetic analysis and adverse events. Data from 1970 to 2006.

Clinical data on cancer patients across all cancer types including demographics, diagnosis, pathology, staging, and treatment. Data ranging from 1976 - current.

Demographic and diagnostic data from all cancer types from 2 regional sites including cancer stage, as well as treatments and outcomes.

PET scans patient demographics and scan information from 1 site. Data from 2004 to current.

Out-patient data from 5 sites

A Prospective Pancreatic Cancer clinical registry. PURPLE (Pancreatic cancer: Understanding Routine Practice and Lifting End Results) is an investigator initiated non-interventional study. Evaluating the presentation, treatments and outcomes of consecutive patients with newly or recently diagnosed Pancreatic Cancer managed in routine clinical practice.

Pathology data from 5 sites

Collection of clinical data on pituitary tumours and acromegaly patients from 1 site, including diagnosis, medications, symptoms and treatment. Data from 1984 to 2009.

Clinical registry of castrate resistant prostate cancer from 6 sites including demographics, disease presentation and progression, staging, molecular characterisation, treatment (surgery, systemic therapy, radiotherapy), toxicities and outcomes. Data from 2016 to current.

NPS MedicineInsight data from general practices across Australia

Australasian database of patients being treated for psoriasis. Information includes long-term information about patients’ psoriasis management, their health and quality of life.

Patient entered clinical data on rare tumours including demographics, family cancer history, genetic mutation testing, diagnosis, and treatment. Data from 2010 to current.

Clinical and demographic data on patients with any rare cancer referred to the Australian Rare Cancer Portal.

Patient-reported information about rare cancers on tumour types, treatments and family history.

Demographic and treatment data on hereditary hemorrhagic telangiectasia (HHT) from 1 site.

The Melbourne Infant Study: BCG for Allergy and Infection Reduction (MIS BAIR) study is a randomised controlled trial (RCT) to assess the effect of neonatal BCG (tuberculosis) vaccination on clinical allergy and infection outcomes over the first five years of life.

Clinical data on Renal cancer patients from 1 site including demographics, diagnosis, surgery, pathology, staging, treatment, clinical trials, recurrence and follow up. Data from 1993 to current.

Sarcoma clinical data from six sites as part of the ACCORD database. Includes demographics, diagnosis, treatment, surgery, radiotherapy, chemotherapy, pathology, radiology and follow up.

The Australian and Aotearoa New Zealand Thoracic Clinical Quality Registry (ANZTHOR Registry) collects clinical, demographic and surgical data including outcome data on all thoracic surgery patients across more ten sites across Australia including public and private hospitals.

Clinical and demographic data for patients with germ cell tumour from multiple sites.