CART-WHEEL Rare Tumour Database
CART-WHEEL.org is the Center for Analysis of Rare Tumours, a BioGrid Australia platform for consumer data entry for people with a rare cancer who participate in data collection for research.
The CART-WHEEL project is approved by Melbourne Health Human Research Ethics Committee (HREC 2007.260) and Professor Clare Scott is the Principal Investigator overseeing the project.
After 18 years of operation, CART-WHEEL will cease data collection on 6 October, 2026, but the data will continue to be used for ethically approved projects.
What is CART-WHEEL?
The main objective of the CART-WHEEL.org rare tumour database is to serve as an ethically-approved data portal for consumer-driven research into rare tumours.
Effective research into rare tumors can be difficult due to the small numbers of each type of tumour diagnosed each year.
CART-WHEEL brought together data provided by individuals from around the world, giving researchers access to a greater wealth of information and supporting consumer-driven research into rare tumours.
What you need to know about your data
For CART-WHEEL non-WhiMSICAL participants, the data you have already entered into the CART-WHEEL database will continue to be securely stored by BioGrid Australia unless you tell us that you want this data to be destroyed. It will continue to be available for ethically approved research projects until you tell us that you no longer want this to occur.
If you do not wish for your data to be retained in the CART-WHEEL database, please email us at contact@cart-wheel.org at any time.
Due to funding constraints, after 18 years of operation we are no longer able to support the ongoing data collection in CART-WHEEL.org.
While the study database is being closed for future data collection, the data already collected will be stored securely to ensure that your data is kept confidential.
The CART-WHEEL study team greatly appreciates your involvement in the CART-WHEEL study which has been collecting data from participants over many years with the objective of collecting sufficient data in any one rare cancer to enable future research in rare cancers.
No. After 6 October 2026, the CART-WHEEL questionnaire is no longer available for data entry.
Unless we hear from you that you want your data to be withdrawn from CART-WHEEL.org, your data will continue being available for future ethically approved projects if this is what you have consented to. If you no longer want this to happen, you can withdraw at any time by contacting us directly at contact@cart-wheel.org.
If you have any questions or concerns, please feel free to reach out to our team at contact@cart-wheel.org.
Thank you for your invaluable contribution to the CART-WHEEL study.
For participants in the WhimSICAL study, participation has now moved to a new mobile and web-based app.
Contact the WhimSICAL team at info@whimsicalstudy.com
Information for WhiMSICAL study participants - WhiMSICAL has moved to a new platform
After nearly ten years of successful data collection via the CART-WHEEL questionnaire, the WhiMSICAL (Waldenström's Macroglobulinemia Study Involving CArt-wheeL) study has transitioned to a more specific, flexible and accessible mobile and web-based application to better serve the global community of patients with Waldenström’s Macroglobulinemia (WM).
The WhiMSICAL study is no longer conducted through the CART-WHEEL website. Instead, the new mobile and web application allows participants to report their data more seamlessly on their phone or computer. This change is designed to make participating in the study easier and more convenient.
The WhiMSICAL mobile and web application is currently available to participants in Australia and will be introduced progressively in other countries.
If the app is not yet available in your region, your data will remain securely stored and you will receive a separate invitation as soon as registration opens in your country.
Questions or concerns?
If you have any questions or concerns, please feel free to reach out to our team at contact@cart-wheel.org.
Thank you once again for your invaluable contribution to the CART-WHEEL study.