From registries and clinical databases to patient-reported outcomes, BioGrid helps researchers and institutions collect, structure, and connect data for research.
Not every research question can be answered using existing datasets.BioGrid can help establish new data collections or strengthen existing ones, ensuring information is captured consistently and can support research over time.
Establish structured collections that support longitudinal research, clinical programs, and research across multiple sites.
Create databases designed around the specific information, workflows, and research questions of a study or program.
Collect surveys, questionnaires, quality-of-life measures, and other information directly from patients.
Connect client databases with other internal systems or approved external data sources.
Develop secure web-based applications where standard systems do not meet the requirements of the research.
BioGrid works with researchers and clinicians to shape data collections around the requirements of the project rather than a fixed technology solution.
Depending on the use case, BioGrid can support:
single or multi-site data collection
longitudinal follow-up
clinician-entered data
patient-reported information
integration with existing systems and research datasets
reporting and ongoing research use
Where appropriate, BioGrid can support established tools such as REDCap or develop more tailored web-based collection solutions.
BioGrid has developed and supported a range of registries and clinical research databases, including:
Designed in partnership with oncology healthcare professionals, ACCORD (the Australian Comprehensive Cancer Outcomes and Research Database) is a web-based application for the collection and management of information relating to cancer patients diagnosis, treatment and outcomes. Through a simple user interface, ACCORD enables clinicians to review and update patient information at any time, including within clinics.
ACCORD datasets have been designed specifically for each tumour stream using national and international standards where possible and in consultation with oncology healthcare professionals. These datasets include demographic, surgery, pathology, chemotherapy, radiotherapy, recurrence and follow-up information.
ACCORD enables the collection of a comprehensive and/or minimum dataset across a wide range of tumour streams, including:
| Anal | Hepatocellular carcinoma | Pancreatic |
| Bladder | Head and Neck | Prostate |
| Bone & Soft Tissue | Hepatic | Renal |
| Breast | Leukaemia | Skin (non-melanoma) |
| Cervical | Lung – NSCLC | Small bowel |
| Cholangiocarcinoma | Lung – SCLC | Testicular |
| CNS | Lymphoma | Thyroid |
| Colorectal | Melanoma | Unknown primary |
| Endometrial | Oesophageal | Other |
| Gastric | Ovarian |
An ACCORD Chemotherapy Prescribing module, incorporating eviQ protocols, is currently in development. Please contact us if you would like to discuss the development of an additional module for other tumour streams.Once installed, ACCORD can be connected to the BioGrid Australia data linkage platform, enabling data to be used for approved collaborative clinical audit and research projects.
The ACCORD user manual will assist you in using the ACCORD Database Version 2.2.9
The Australian and Aotearoa New Zealand Thoracic Clinical Quality Registry (ANZTHOR) has recently been established by the Australian & New Zealand Society of Cardiac & Thoracic Surgeons (ANZSCTS) as part of its efforts to provide a clinical quality registry for the routine collection and monitoring of surgical procedure data on all Thoracic Surgery performed in Australia and Aotearoa New Zealand.
Designed in partnership with dermatologists, the BioGrid Dermatology Clinical and Research Database is a web-based application that enables the management of patients’ dermatology condition diagnosis, treatment and follow-up information. Designed to operate within clinics, with clinicians reviewing and updating patient information during consultations, the application produces patient summary reports and letters to facilitate multi-disciplinary care.
This BioGrid Dermatology Clinical and Research Database enables the collection of a comprehensive dataset, including:
To support its use within clinics, the BioGrid Dermatology Clinical and Research Database produces a number of reports and letters, including:
The database can also be connected to the BioGrid Australia data linkage platform, enabling data to be used for approved collaborative clinical audit and research projects.
Designed in partnership with endocrinologists, the BioGrid Diabetes Clinical and Research Database is a web-based application that enables the management of patients’ diabetes diagnosis, treatment and follow-up information. Designed to operate within clinics, with clinicians reviewing and updating patient information during consultations, the application produces patient summary reports and letters to facilitate multi-disciplinary care.
This BioGrid Diabetes Clinical and Research Database enables the collection of a comprehensive dataset, including:
To support its use within clinics, the BioGrid Diabetes Clinical and Research Database produces a number of reports and letters, including:
The database can also be connected to the BioGrid Australia data linkage platform, enabling data to be used for approved collaborative clinical audit and research projects.
Designed in partnership with oncology healthcare professionals, the electronic Prostate Cancer Australian Database (ePAD) Clinical Registry is a web-based application designed to support the collection and management of information relating to patients with advanced prostate cancer. The clinical registry is being used to support research into the treatment and management of patients with prostate cancer.
The ePAD Clinical Registry enables the collection of a comprehensive dataset, including:
The database has also been designed to connect to the BioGrid Australia data linkage platform, enabling data to be used for approved collaborative clinical audit and research projects.
Designed in partnership with endocrinologists, the BioGrid Pituitary Tumour Database is a web-based application that enables the management of patients’ pituitary tumour diagnosis, treatment and follow-up information. Designed to operate within clinics, with clinicians reviewing and updating patient information during consultations, the application produces patient summary reports and letters to facilitate multi-disciplinary care.
The BioGrid Pituitary Tumour Database enables the collection of a comprehensive dataset, including:
To support its use within clinics, the BioGrid Pituitary Tumour Database produces a number of reports and letters, including:
The database can also be connected to the BioGrid Australia data linkage platform, enabling data to be used for approved collaborative clinical audit and research projects.
Designed in partnership with oncology healthcare professionals, the TABITHA Clinical Registry is a web based application designed for the collection and management of information relating to the diagnosis, treatment and outcomes of patients with HER2+ metastatic breast cancer. This clinical registry is being used to support research into the Treatment of Advanced Breast Cancer in the HER2 Positive Australian Patient (TABITHA).
The TABITHA Clinical Registry enables the collection of a comprehensive dataset, including:
The database has also been designed to connect to the BioGrid Australia data linkage platform, enabling data to be used for approved collaborative clinical audit and research projects.
Designed in partnership with oncology healthcare professionals, the TRACC Clinical Registry is a web based application designed for the collection and management of information relating to the diagnosis, treatment and outcomes of patients with advanced colorectal cancer. This clinical registry is used to support research into the Treatment of Recurrent and Advanced Colorectal Cancer (TRACC). The TRACC project commenced in 2009 and has since collected data from over 1800 patients from 16 participating institutions across Australia.
The TRACC Clinical Registry enables the collection of a comprehensive dataset, including:
The database has also been designed to connect to the BioGrid Australia data linkage platform, enabling data to be used for approved collaborative clinical audit and research projects.
A new registry or database does not need to operate in isolation.
Where appropriate and approved, BioGrid can connect collections with existing clinical, research, administrative, or external data sources to create richer datasets for research.
Yes. BioGrid can work with researchers, clinicians, and institutions to design and establish registries, clinical databases, research databases, and other purpose-built data collections.
Yes. Where appropriate and approved, BioGrid can integrate or link collections with existing institutional databases and external data sources.
No. BioGrid can support individual research projects, ongoing clinical collections, registries, and larger collaborative research programs.
Start with the research question and the information you need. BioGrid can help determine the right collection, integration, and governance approach.
See how BioGrid connects and provides governed access to research data.
Learn how BioGrid provides the secure infrastructure researchers need to access, manage, and analyse sensitive health data while protecting privacy and supporting collaboration.